This is me at home during quarantine, self isolation or COVID-19. There are so many terms we can use during this global pandemic. This was taken last week while getting ready for a zoom call with the local (community) TV station. To talk about what I do, what I know, and what I advocate for - autism. I continue to work behind the scenes for S.Au.S. but my main job over the past few weeks is to care for my son, Keyan (who has level 3 autism), while my hubby continues to work and my daughter focuses on her studies.
This time has brought me to a place of the highest of highs and the lowest of lows. I have had time to strip away the noise and focus on what is most important. I try to stay positive for my family and for all those who support my work but I need to share the truth...raising a boy with autism sucks hard sometimes! Merely the amount of noise he makes in a day is like nails on a chalkboard. The constant demands to have his needs met is exhausting. Of course, it’s not his fault. Even when Keyan is being a good boy - which he has been most of the time, it is still energy draining beyond words.
Why am sharing this with you? It’s part of my job to raise awareness- it is not what I get paid for but it is my calling in life - to advocate for autism. This time without outside help (babysitters), school or a chance to get away has me totally depleted.
When it is safe to be close to others please help those you know raising children with autism. Offer to take their child for a bike ride, drive or for ice cream. Volunteer to watch the child swim so mom and dad can escape for an hour or two. We are all tired of cooking so cook extra and bring it over to help unburden them with daily chores. Kids of all ages like the park - maybe bring their child to swing. Always offering a hot cup of coffee/tea and lending an ear is everything. Autism is not scary - all you have to do is raise your hand and ask “how can I help”. We are often reluctant because we are not use to individuals offering up easing our burdens. It’s like all other dilemmas we face that make us uncomfortable- continued in comments...